Been playing with my Pazzles Inspiration electronic cutter again

UPDATED MAY 2014

Gabby's health journal - Part 5 - Month 3 Report

An interesting month. After 13 years of not knowing one other person with Schnitzler Syndrome, I have now linked up with 28 others via a support group on Facebook.  Their stories are all so strangely familiar, particularly the part about Kineret giving us our lives back.
So, on my 7th day of reducing my Kineret dosage to every 34 hours, I became very ill, so had to pull back a bit. I have now worked back to every 32 hours, without ill effects, and am staying there for a while. Talking to SS people on Facebook, only two of them have managed to get down to injections every two days; most others have to stick to every 24 hours, and one of them even gets ill again before the 24 hours is up.  So it seems I'm somewhere in the middle. None of them have developed lymphoma (yet), which may be due to taking Kineret.
I had my annual haematologist visit during the month and, apart from my protein spike (7.0), my blood results are "the most normal I've seen in a long time" says the doc. I'm well pleased.
My weight loss plateaud for a few weeks, but have started to lose a little again. Had one migraine in past month (just yesterday). My daily walks continue (except when "poorly").

Gabby's health journal - Part 4 - Month 2 Report

Well, things are going pretty well.  I'm averaging half a kilogram per week weight loss, my blood pressure is good, and my fitness is improving. (I can climb to the top of the Kangaroo Point stairs now - 106 steps straight up!)  I have reduced my Kineret dosage to one injection every 34 hours and, except for one hiccup, things have been going smoothly.  I continue to increase the intervals by one hour for a week and hopefully I can reach 36 hourly intervals without my illness (Schnitzler Syndrome) recurring.

I didn't have a migraine for two months, and then had two migraines in quick succession.  But overall, I'm feeling well and have more energy for daily tasks, like housework.  I have even started gardening again.

Have also been doing Bones for Life (Feldenkrais) movements every day and that feels wonderful.  I do my heel bounces when I'm out walking - while waiting for traffic lights to change.  I've noticed that I'm using my body in better ways, e.g. picking something up from the floor, I spontaneously bend my knees and do not bend from the waist.

I can walk 12km without a problem and am "in training" for a 17km bush walk in June - the Kin Kin loop of the Noosa Trail.  One great (Brisbane) city walking loop is: Walk to Southbank, along river to Go Between Bridge, along Coronation Drive to Toowong Village.  Have breakfast then a read in the Toowong Library.  Continue walk through back streets of St Lucia, hugging the river, to The University of Queensland, and home again via the Eleanor Schonell Bridge and Dutton Park.  A variation of that walk is to take a side trip to the Mt Coot-tha Botanical Gardens.  Recently, I walked the 9km trip via the Eleanor Schonell Bridge to St Lucia, Toowong, then to Mt Coot-tha Botanical Gardens without a rest break.  This is a miracle considering that when I was last ill with Schnitzler Syndrome (about two years ago), I couldn't even walk to the corner shop without bursting out into tears and having to rest before returning home.

I've been reading up on Interleukin 1, which causes inflammation and which I have in excess.  Omega-3 fatty acids are a good dietary source to keep them under control.  So I'm making sure I have lots of foods containing these in my diet.  As a vegetarian, I use plant sources such as walnuts, leafy greens, flax seeds, tahini, chia seeds, pepitas, avocado, hommus, sesame seeds, alfalfa sprouts.

I'm still juicing for breakfast each day and adding a dessertspoon of chia seeds.  Chia seeds give you the most amazing bowel movements.  I just love my Oscar Neo juicer.  Have found a great source of organic kale at Flannery's, just a few minutes walk from home.

Incidentally, I just took part in the National Bowel Cancer screening program and the results were GOOD.

A great new juice recipe:
fennel, parsnip, apple, cucumber, pineapple, lime juice, ginger
It's a lovely pale green.  A couple of squeezes of lime juice gives it something special.

My latest recipe for bliss balls is:

BASE MIX
Sprout organic wheat berries, sunflower seeds, quinoa, chia seeds, pepitas, flax seeds.
Soak almonds for 8 hours
Grind all the above through my Oscar Neo juicer (processing attachment), plus the following:
dried apricots/peaches/pears; dates; figs; sultanas.  (I have just bought some dried cranberries, which I'm going to add next time.)

OPTIONAL EXTRAS
After grinding, mix in cereal such as rolled oats, Just Right or Weetbix; and/or tahini. Coat with sesame seeds or dessicated coconut.  When I get some cacao, I'm going to try some of that with the mix.

I've also been making my own bread rolls ... hey, I'm on a roll.  To my basic wholemeal bread dough, I add sprouted wheat, quinoa, sunflower seeds, alfalfa and flax seeds.  All the good stuff!

Gabby's health journal - Part 3 - first month report

After finishing my first juice fast, I continued with healthy eating and regular exercise (mainly walking several kilometres per day).  I have had a vegie/fruit juice for breakfast each day and been eating my normal vegetarian food for the other two meals.  Also eating more salads.  I am not "dieting", but am eating a "healthy diet".

In the first month, I have lost 2kg and my blood pressure is in the 125-135/75-80 range.  My pulse rate is usually in the low 50's in the morning, but goes up to around 60 later in the day.  I'm happy with this progress, but expect my blood pressure to reduce further when my weight drops below 90kg.

Although I haven't lost much weight yet, I feel a lot better than I was.  Sometimes I almost feel a lightness in my step when I go walking. I am decreasing my medication (at my rheumatologist's suggestion) slowly - now injecting every 30 hours instead of every 24 hours and have experienced no problems.

I bought a new juicer - an Oscar Neo cold-pressed type - which also makes nut butters, hommus, bliss balls, pasta, etc.  I love it!  Am sprouting like crazy - fenugreek is my favourite - and have started soaking wheat berries to make rejuvelac.  Also making my own yogurt, hommus and nut butter.

Today I've started another short juice fast and feel pretty good.  I drink around 64 oz juice per day (four large glasses) (plus water and herbal tea).  The time taken to juice this much in one go is 28 minutes from start to finish.  This includes fruit/vegetable preparation time, juicing, cleaning up the juicer parts and reassembling.  It would be a lot faster with a centrifugal juicer, but I prefer the quieter start to my day + more juice extracted and less oxidation.

The chooks don't like the fruit/vegie pulp!  They peck at it a couple of times then walk away.  I'm wondering if the blue tongue lizard will eat it.  Will have to start putting it into muffins, etc.

Am meditating for an hour most mornings.

Gabby's health journal - Part 2 - Meditation

DAY 8 - 10 March 2013

Woke up in a deep meditative state, so stayed in bed till around 10am.  Blood pressure up after meditation, but pulse rate down.  Strange.

In meditation, it feels like I'm travelling through a wormhole to another dimension.  There is clutter and obstruction along the way.  Sometimes it identifies itself; sometimes it doesn't.  That doesn't matter.  It's just obstruction.

I simply relax, breathe and watch.  The obstruction melts away and I continue to move towards my centre.  Sometimes it feels as though I'm watching lava flowing slowly from a volcano.  At other times, there is a release of putrefaction from my mind that I can taste and smell.  It is death and disease.

Yesterday, my aunt spoke of the ferry she used to catch when she was a child, down the Brisbane River to Redcliffe - the S.S. Koopa.  My uncle then said: "Yes, it continued on to Bribie Island from Redcliffe."

I then realised that this was the same ferry on which I had my first meditative experience when I was three years old.  Ferries are so iconic in terms of meditation and spirituality, aren't they?  Siddartha, in the novel by Herman Hesse, met a ferryman who learnt so much from watching the river; and he, too, became a ferryman.  In my case, I had the overwhelming feeling that watching the ocean would reconnect me with the universe.

My mind is an ocean full of flotsam and jetsam that doesn't belong there.

The journey continues.

-oOo-

First off:  warm water with squeeze of lemon.

Late breakfast:  Juice (apple, carrot, pear, peach, ginger)

Late lunch:  Eggplant bake on seed bread; leftover breakfast juice
Dinner:  Ricotta/avocado/tahini mashed with lemon juice, basil and pepper. Handful of cashews and pinenuts. Green tea.

WALK - YES

B: 10am (N)

K: 6:30pm

DAY 9 - 11 March 2013

Meditative again this morning.  And blood pressure was up, but pulse rate was down, just like yesterday (146/76; 47 and 158/75; 45).  I thought meditation would reduce blood pressure, but that certainly doesn't seem to be the case with me at the moment.  My blood pressure and pulse rate returned to normal (127/66; 62) by the afternoon.

First thing:  warm water with squeeze of lemon.
Breakfast:  Juice (apple, pineapple, pear)
Lunch:  Seed bread sandwich (leftover ricotta/avocado mix & Vegemite); grapes; green tea.
Mid-afternoon:  Piece of fruit and nut bar
Dinner:  Minestrone and ricotta; fruit and nut bar; grapes

WALK - YES
B: 9:45am (N)

K: 10pm

DAY 10 - 12 March 2013

Woke early. BP is up and PR down again. Took two readings:  151/79; 49 and 137/76; 46.  Strange how BP goes up while pulse rate goes down.

First thing:  warm water with squeeze of lemon

Breakfast:  Juice (apple, carrot, celery, cucumber) and chia seeds

Morning tea at craft: white tea, two crackers and cheese, bikkie.

Lunch: (takeaway) cauliflower and cheese pie (awful!); iced lemon tea

Mid-afternoon: few grapes, bit of frozen banana

Dinner:  Brown rice salad with ricotta (large serving)

Walked to and from craft at Greenslopes today.  9km round trip.

WALK - YES

B:  10:50am (N)

K:  None

Gabby's health journal - Part 1 - my first juice fast

Notes:

As well as the food listed, I drink as much water as possible.

I've found walking to be the best thing for bringing down my blood pressure.  So I shall show when I walk each day as: WALK - YES

Blood pressure readings are taken in the morning before breakfast.

As this is my first juice fast, I am also recording my bowel movements (Bs).  Well, I find them very interesting!  Normally I have them twice a day.

I am fresh juicing with my old Breville juice fountain each day.  However, I've discovered that a centrifugal type juicer is not the best sort to use.  Cold press juicers extract more juice and nutrients, plus cause less oxidation (see Choice review online).

Key:

BP = blood pressure

PR = pulse rate

B = bowel movement

N = normal

R = runny

S = small

K = Kineret injection

DAY 1 - Sunday 3 March 2013

Weight: 93kg          Blood pressure:  165/88      Pulse rate:  56

Today I am preparing for a juice fast - not a long one - but I can't remember fasting (intentionally) for even half a day before.  So this is a new challenge for me.

Breakfast: Juice (apple, pear, carrot, celery, ginger)
Lunch: Home-made vegetarian minestrone, grapes, water
Mid-afternoon: Juice (kale, spinach, celery, carrot, kumara, parsnip, zucchini, rocket and nasturtium)
Dinner:  Minestrone, grapes, water

WALK - YES
B - None.
K: 11pm

DAY 2 - Monday 4 March 2013

Breakfast: Peach and a few grapes. Water.

Lunch: Home-made vegetarian minestrone, water, juice (pear, apple, celery, carrot and cinnamon juice - YUM!)

Mid-afternoon: Peppermint and ginger tea

Dinner: My first mean, green juice a la Joe Cross - pleasantly surprised.  His recipe for mean green juice is: 6 kale leaves, 4 stalks celery, 1 cucumber, 2 green apples, half lemon (including skin), thumb-sized piece of ginger.

Found large bunch of very fresh organic kale at Flannery's - $6.50.  Fresh GREEN vegetable juice is a very important part of juice fasting.

WALK - YES

B: 8:30am (N); 9:45am (R); 2:30pm (N)

K: None

DAY 3 - Tuesday 5 March 2013

First day of juice fast proper.

Breakfast: Mean green juice with pear and extra apple added

Mid-morning: Small portion of today's breakfast juice

Lunch: Normal portion of today's breakfast juice

Dinner: Juice (fennel, pineapple, carrot, apple, radish, spinach, celery, ginger - YUM!); half glass pineapple and peach juice - also YUM but the pineapple does give me mouth ulcers unfortunately; peppermint tea.

Still feeling fine.  Only occasional moments of desire for solid food, but they don't last long. No headaches. Don't know how long I will fast.  I'm taking it day by day. Blood pressure down to normal range.

WALK - YES

B: 8:30pm (S)

K: 3:30am

DAY 4 - Wednesday 6 March 2013

BP: 126/73     PR: 64

First thing: warm water and squeeze of lemon

Breakfast:  Juice (orange, apple, peach, grape, rockmelon, pineapple, carrot, celery)

Mid-morning:  Breakfast juice with spinach and beetroot added

Mid-afternoon:  Juice (mango and watermelon)

6pm: Broke fast with a few grapes, bits of frozen banana and breakfast juice

Dinner:  Half an avocado; multigrain sandwich half vegemite/half peanut paste

Walked to the city - 6km round trip.  One hour after walk, BP down to 108/67.

WALK - YES

B: 9:10am (R)

K: 6.45am

Well, that was interesting.  I survived my first juice fast better than I expected.

Now I know that I can do it, I will do it again.

DAY 5 - Thursday 7 March 2013

Weight:  91kg     BP:  127/77     PR:  51

Slowly returning to normal food.  Weight has started to come down and BP has returned to normal.  LOVELY.

First thing:  warm water and squeeze of lemon

Breakfast:  Grated frozen fruit residue pulp (peach and pineapple) and grated frozen banana

Mid-morning: Chewed a few organic wheat sprouts

Lunch:  Mashed avocado, lemon juice, ground kaffir lime leaves, tahini, pepper with crackers; grapes; peppermint tea

Mid-afternoon: Yummy fruit platter: mango, grapes, rockmelon, peach

4:40pm: Avocado and vegemite multigrain sandwich

7:30pm: 6 cashews

9:30pm: Wheat sprout porridge with honey and coconut milk

WALK - YES

B: None

K:  9:30am

DAY 6 - Friday 8 March 2013

BP:  126/72     PR:  56

Officially the last day of juice fast (winding down)

First thing:  warm water and squeeze of lemon

Breakfast:  Slice of mango

Mid-morning:  Wheat sprout porridge with honey and coconut milk

Lunch (at Edna's):  Edna's lentil and vegie bake on white toast; bikkie and white tea

Mid-afternoon: Crackers and white tea

Dinner:  Tried to eat raw carrots, parsnip and celery, but couldn't chew them properly and they didn't taste good.  Had a cracker and a small piece of Allan's birthday cake instead.

WALK - YES

B: noon (N)

K:  12:30pm

DAY 7 - Saturday 9 March 2013

BP:  120/69 (PERFECT!)     PR:  59

Still at Edna's this morning to see Jen off on her New Zealand cruise.  Went on Jen's "shaker" machine for 10 minutes and played Wii bowling with Edna.

Breakfast:  Juice (made by Jen with Edna's non-centrifugal juicer - a Kuvings Silent.  She cuts the food quite small and leaves it to soak in water for 10 minutes before juicing, which gives her time to go on her walking machine.) of apple, carrot, fennel, pear, kale, celery, silverbeet, parsnip with chia seeds added later.  CHIA seeds were great!  They were left long enough to swell.

Morning tea:  Fruit cake, crackers, white tea

Lunch:  1 piece seed bread with ricotta and tomato; 1 piece seed bread with strawberry jam; leftover breakfast juice, white tea
Mid-afternoon:  half a frozen banana
Dinner:  Home-made vegetarian minestrone; fruit platter (mango, peach, grapes); bikkie; chai latte

I have come to the conclusion that I need a cold-press juicer.  After hours of research on the internet, tonight I ordered an OSCAR NEO COLD-PRESS JUICER - $449 with free delivery.  This one does far more than just juice.  It has a very good reputation so I think it will be well worth the extra cost.  I'm excited.

I've been injecting Kineret every 27 hours for nearly a week with no ill effect.  Encouraging.

WALK - YES
B:  9:30am (N)
K:  3:15pm

Gabby's health journal - Introduction

I have a rare auto-inflammatory disease called Schnitzler Syndrome for which I have to inject daily with Kineret (Anakinra).  This was on the Government's PBS list, so I only had to pay peanuts for it.  But a couple of years ago, it was taken off the PBS list, which meant that I was without it for about 6 months because I couldn't afford to buy it.  It costs around $12000+ per year.  And no other medication gives me any relief - except for long term, high dose steroids - which was out of the question. I was very, very ill.

Then the Mater Hospital, Brisbane, came to my rescue and agreed to pay this huge sum for me. I can't say how grateful I am to them because without Kineret my life is a living hell.

While I was without any medication, I lost 25kg and lots of my hair fell out because I found eating very difficult and I wasn't getting enough nutrition.  Once I started injecting again, however, my appetite returned ... with a vengeance ... and I ballooned up to 93kg.  My blood pressure also went up, of course. Coincidentally, around the same time, I came across the movie/documentary called Fat, Sick and Nearly Dead, which gave me the much needed boost to change things.

My rheumatologist had suggested I try to cut down on my dosage and I think this is a good idea.  I wouldn't be such an economic burden on the hospital and it would just be great to be less dependent on medication.  Ideally, I'd love to take zero meds, but if I could get it down to once every two days, that is probably more realistic.  However, at the moment even that is not possible.  I got very ill after just 30 hours without an injection.

But I'm hoping that healthy living may help me to change that situation and now I'm cutting down on my injections VERY SLOWLY - every 26 hours for a week; then every 27 hours, and so on.

So, I've started a juice fast and a health journal (see forthcoming posts).